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Providing Community Support and Social Inclusion for Disabled Children and Young People
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Minutes of Hackney Families Together Meeting
at the Ann Tayler Centre
on Thursday 6th November 2008


21 parents attended the group

Professionals attending

Scilla Morgan
Sheila Ramdular
Bev Rolfe
Jenny Menzies
Gillian Goodchild
Chris Henderson
(+ interpreter)
Robert Raby
Penny Dixie
Lizzie Yauner
Andrew Lee
Neil Hudson

Sheila Ramdular facilitated the meeting.

1. Introductions from the speakers and parents:

Sheila welcomed everyone to the group and everyone introduced themselves.

2. Penny Dixie - Assistant Director Learning Trust

Penny explained that her remit covered: educational psychology; the inclusion team; SEN assessments; parent partnership; Healthy Schools; transport. Over the past 18 months, since she last attended HFT, a lot of progress has been made, though services are still not perfect, and some educational services are based at the Ark, working alongside PCT and Social Care. The Learning Trust is committed to working with children, listening to them via reviews and IEPs, and also listening to parents. She explained that a proportion of the budget allocated to the Learning Trust for SEN is devolved to schools, which then have responsibility over how it is spent.

3. Lizzie Yauner - Head of Inclusion Team

Lizzie introduced the new forum for young people with disabilities, which meets once a term, with a specific theme (eg sports) to discuss how it works for disabled youngsters and how it could be improved.

The forum has produced a new DVD, with 800 copies to be disseminated to all schools and agencies, with an accompanying booklet which the young people wrote; these will raise a lot of questions for schools to consider.

The DVD was then shown and parents had many comments and questions:

  • I like the film as it is the children speaking; we all want teachers to be able to understand and know each child
  • Teachers should take an interest in each child's individual interests.
  • Particularly liked the re-run bit - the first section showing the teacher talking to the carer, then showing the teacher talking directly to the young person
  • Also liked the examples of a teacher being unhelpful to a child who was unable to do a task, then modelling how he could have helped the child to achieve the task
  • Really liked the section where the young people talked about their aspirations for the future, including career choices
    Nb the forum has invited disabled young people to be role models
  • Teachers need training in special needs
    Lizzie explained that she does SEN training for all newly qualified teachers.
4. Andrew Lee, Head of Educational Psychology

Last time there was an audit of special schools there was criticism of how parents were involved. The audit process has now been redesigned.

Andrew explained the process of 'provision management'.
  • The government wants schools to self manage, so to this end schools are organised into clusters of 6 - 10 schools, which share good practice
  • Each cluster is facilitated by educational psychology, inclusion or assessment services.
  • Within each cluster meeting a school is given 15 minutes to say how/what they are doing - others may challenge some aspects of this
  • Out of this process the school devises an action plan for future improvement, which is monitored and followed up by the cluster facilitator. For example, schools will need to demonstrate how they identify SEN, what provision they make, who provides it, what evidence is there that this is effective, what staff training is in place, how is the provision measured and monitored?
5. Questions & answers

Q. Why hasn't my child got an IEP?
A. IEPs (Individual Education Plans) are no longer compulsory. School do have to set targets, however, so these must be planned into the provision either via IEPs or through Provision Management.

Q. Transition form Primary to Secondary is awful - the system is so different , with so many subject teachers and not all the teachers know my child's needs.
A. There needs to be less emphasis on the National Curriculum and an expanded awareness of special educational needs. Basic knowledge of an individual child can get lost in transition, but subject teachers should set both curriculum AND SEN targets and should have strategies in their planning on how to do this, including use of resources (people or materials) The senco is responsible for enabling all teachers to get information and access to specialist support.

Q. What is the parent role, who should parents speak to if they are concerned?
A. Probably the senco.

Q What if I can't reach the senco? Can I contact the Learning Trust?
A. The Learning Trust cannot set standards, it can only give examples and point to good practice.

6. Introductions

Robert Raby, the new Autism intervention worker was introduced. He is funded by Health but based within Education and will work with families in the home. Lizzie explained that there will be criteria for acceptance of Robert's service - families who have been on the Early Bird Plus scheme or who are willing to go through it, and there will be a referral process and a panel to accept referrals - however, Robert has only been in post a couple of weeks and is not yet taking on case work until he is familiar with all the borough's services. Please don't mob him!

7. Feedback from group work - Are your child's special educational needs being met in Hackney? If yes, how? If no, what could be improved?

Parents worked in groups with Penny, Andrew, Lizzie or Neil Hudson, Head of SEN assessment and monitoring

Group 1
  • Difficulty of getting through to senco, especially when parent is called in to deal with issues arising from the child's disability. Letters are not appropriate in urgent cases, though might get a response if a complaint
  • Where there is a situation when a child is refusing to attend school there is no help from senco and no sense of urgency in returning calls.
  • Home-school communication is poor
  • Senco doesn't have decision-making powers, seems very ineffective.
  • Could there be a second senco, so someone is always available for phone calls?Or sufficient non-contact time for senco to be available to parents?
  • There should be a laminated list of a child's needs that accompanies the child and is available for every teacher, including supply staff? Children suffer when needs are unknown to teachers. (Noted that there is often a pupil profile, or 'passport' which does exactly this)
Group 2
  • There is a crossover of professionals - parents need clarity over their role
  • Paucity of summer provision, especially for younger children (ie<5s)
  • There is a gap for younger children in after school provision too.
  • Extra support needed for literacy an learning needs
  • All staff need training in new programme for dyslexia
  • High staff turnover is a problem
  • More respite or use of volunteers would help.
Group 3
  • Transport is a huge issue. Is the Learning Trust looking at all the needs of child when considering school transport?
  • Could LT help with cost of petrol, or 'walking buddy' or an escort, if not providing transport?
  • Transition a horrendous time.
  • Highly specialist and very expensive equipment needed by a child was left behind in transition - child left without equipment that enabled him to learn, new school couldn't afford, can't equipment accompany child?
  • Parents fighting the system.
Group 4
  • Secondary transfer problematic. The process could be easier
  • Transport is 'all or nothing' - could there not be a temporary provision?
  • Or a scheme to teach children how to travel independently?
  • Criteria for school transport provision seem unclear.
  • Sen links with Social Care - not sure how this works.
Action points
  • Penny Dixie to ensure that an article explaining school transport is sent to The Key
  • Penny Dixie will raise the issue of equipment at the Transitions group
  • Lizzie Yauner to emphasise at Senco Forum - the importance of ensuring child's pupil profile available to ALL teachers.
Grapevine.

Scilla Morgan announced the parents' course being organised by Disability Hackney - flyers available

There is some government money available, via the Aiming High agenda, for parent forums such as HFT. Potentially £2K this year, £10K next. How would HFT like this to be used if we apply? Training? Publicity? Resources? Some urgency as Scilla and Sheila need to apply for the money by Monday!

Chris Henderson gave an update on his work on short break development. This will be the topic of the January meeting. He emphasised the need for parent consultants (as raised in the last HFT meeting). Parent consultants will no longer need to be self employed, they can be paid as employees. The question was raised whether this role would be available to Turkish parents, with interpreting support? CH took this question away for consideration.

Any other business

Issue was raised of extended schools and whether children with special educational needs were always able to access. Some parents were unclear what extended schools were.

Dates for next meeting

Dec 4th - Extended schools & Children's centre
Jan 29th - Short Breaks
Feb 26th

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